Other RLS Website Resources Page

Index

Other websites with RLS information
Message/Bulletin Board and Forums

Other Websites with information on RLS

Restless Legs Syndrome Foundation Support Page - This is the RLS Foundation's support page. Locate a support group in your area or get brochures, newsletters and other information on RLS.

The National Institute of Health (NIH) and The National Heart, Lung, and Blood Institute (NHLBI) - They have a Sleep Information website with information about all sleep disorders including RLS. The National Institute of Neurological Disorders and Strokes Health (NINDS) and The National Institute Health (NIH), fact sheet on Restless Legs Syndrome which is a 4 page fact sheet on RLS that can be downloaded or ordered by email. In addition, they have a new 16 page document called Restless Legs Syndrome: Detection and Management in Primary Care intended for primary care doctors that has some basic and official looking RLS information (may be helpful to make your own physician aware of RLS). You can download the information from their website or order hard copies of the document. The NIH also has a MedlinePlus site that contains information about RLS such as research trials, news, and treatment of the disease.

Jill Gunzel's Personal Non-medication RLS Treatment site - This web site is written by Jill Gunzel, AKA the "RLS REBEL", an RLS sufferer for more than 40 years. She offers her experiences, observations, theories, and non-medication treatments for RLS. You can also order a copy of her new book, Restless Legs Syndrome: The RLS Rebel's Survival Guide which has become available as of April, 2006 on her site.

The Dutch RLS Foundation's web site - This is a new site that is developing an English version in addition to their basic Dutch version.

Talk About Sleep - This is a new site devoted to all aspects of sleep including RLS and PLMD. Has lots of information and chat groups.
Ekbom Support Group - The Ekbom Support Group was formed in the United Kingdom in 1988 by Mrs. Eileen Gill and now has members in many parts of the world. There is a lot of information on RLS including a forum that you can join.
Frank Lewis web based page for research into RLS - This site is done personally by Frank Lewis as an effort to use a web based survey to determine the cause of RLS. He has a theory about RLS being muscle based and would like to use this survey to help support this hypothesis. This survey is not sponsored by any scientific or other organization. He is doing this study on his own and has independently thought up his idea of what causes RLS and how to use this web page survey to support his hypothesis.
The We Move site has very good information for both physicians and patients.
Bandolier site - This is a new British site that reviews studies done on various treatments for RLS.
Johns Hopkins Center for RLS - This site has information about RLS and research projects and opportunities for subjects with RLS.
National Sleep Foundation - This site has a wealth of sleep information and an RLS article reviewed by Richard Allen, Ph.D. and Merrill M. Mitler, Ph.D.
Medifocus Guidebook on Restless Legs Syndrome- This site has RLS information with abstracts (summaries of medical articles) on RLS topics. Abstracts can be read and the articles can be downloaded for a few through PubMed. You can access and review the new MediFocus Guidebook on Restless Legs Syndrome at http://www.medifocushealth.com/NR023/restless_legs_syndrome.php or visit their new site at www.medifocushealth.com .
RemedyFind is a free, unbiased site (not sponsored by drug companies etc.) where individuals can rate the effectiveness of the Restless Legs Syndrome treatments they have tried.

RLS Message/Bulletin Boards and Forums

The RLS Foundation's chat room bulletin board - This is run by the RLS Foundation as has some excellent discussion groups about all aspect of RLS. It is a very active board with lots of current posts.
The We Move Discussion Forum - This is run by by the We Move Website and is a fairly active board.

RLS_Insomnia_Support_Group@yahoogroups.com - This is a newer support group that is moderated and run by Donna McLellan. It is quite active and has many members from the RLS Foundation's website as regular visitors.

Cyberspace RLS (Restless Leg Syndrome) Support Group - Discussion list for RLS/PLMD sufferers. Topics include treatments, medications, alternative therapies and most of all....support from over 950 other RLS sufferers from all over the world. This support group has been very effective for people that do not have a local RLS Support group in their areas. It is now moderated by Donna McLellan.

RLS_PLMD at yahoogroups - This site is an e-mail list support group for people with very active or severe restless legs syndrome and/or periodic limb movement disorder. RLS_PLMD at yahoogroups has been set up specifically for people that have found no benefit from herbs, supplements, over-the-counter remedies or do-it-yourself home treatments and would rather not deal with lots of e-mails pertaining to their use. These topics are off-topic for this group. This group is moderately active.
Talk About Sleep - This site has message boards for many sleep topics including RLS/PLMD. It has a moderate amount of posts for RLS/PLMD. It also has periodic chats about RLS/PLMD.
Sleep Net - This site has message boards for many sleep topics including RLS/PLMD with a moderate amount of posts.
HealthBoard.com - This site has message boards for many health related problems including RLS. It has moderate activity for RLS posts.
Brain Talk Communities - This site has forums for many neurological disorders including RLS. The RLS discussion forum is mild to moderately active.

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Source: Other RLS Website Resources Page
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